"Do kids with epilepsy fight to perform normal childhood activities well? Absolutely. Does that make their experiences with them normal? No...Their childhoods are not normal: they are extraordinary."
"The sad truth is that this type conversation for those within the epilepsy community is normative. People do not understand the risks, losses, and cost-versus-benefit weigh outs that occur on a daily basis for individuals battling epilepsy. They see seizures as an annoyance, not a life-altering - let alone life-threatening - disorder."
"It's okay, Lloyd. None of our parents are perfect! I mean, my mom is weird and collects sea shells. Your dad levels cities and attacks innocent people. So, they've all got their quirks, you know?" - New Lego Ninjago Movie Trailer, Release date: Fall 2017. I took my kids to the theatre recently and this hysterical quote … Continue reading When Comparison Kills Compassion
It seems like every blogger gets around to this post sooner or later, and each one has their own reasons for writing. Here are my personal reasons for why I write this blog. I WRITE TO EXPRESS GRATITUDE. When you're diagnosed with a chronic illness, the things that you always knew were blessings in … Continue reading Why I Blog Our Story
What is it like parenting a child with epilepsy? What is it like having epilepsy? Those feelings and experiences can be hard to define. Because the truth is, they change. Some days, living with epilepsy feels like: routine. On those days, epilepsy takes a backseat place in our daily life. We automatically pull supplements, load … Continue reading What Living with Epilepsy is Like
"Our partners' help is not limited help...They always find ways to support us...No corporate supporter has ever left Give Kids the World." "No one can know the goodness that is set in motion by your participation and support...Every act of kindness, every service and dollar donated, sets off its own series of unseen ripples." - Henri … Continue reading Sea World (10)
"The Lord bless you and keep you; the Lord make his face to shine upon you and be gracious to you; the Lord lift up his countenance upon you and give you peace." Numbers 6:24-26 ESV We re-entered Epcot in the evening with a beautiful fairy. (Pixie dust had transformed Mercy into Tinker Bell at the … Continue reading Epcot, Take Two (8)
"Yes, salagadoola means Mechicka booleroo But the thing -a- mabob that does the job Is bibbidi-bobbidi-boo" - Lyrics to Bibbidi Bobbidi Boo Little known fact: I played Cinderella in my sixth grade elementary school play. (The fact that sixth grade was still considered elementary school gives you a clue as to my age.) I lit … Continue reading Bibbidi Bobbidi Boo! (7)
"I see life differently from someone who has not seen life's dark side. Moments are precious, every moment, and because of what I have experienced, I know and appreciate this." - Henri Landwirth, Founder of GKTW Village On our way out of the Village that first morning, we stopped by the Gingerbread House to borrow children's videos for … Continue reading Epcot, Take One (6)
"Crying is how your heart speaks, when your lips can't explain the pain you feel."